'We're Still Fighting Every Day': Owasso Boy Battles Rare Disease

A 12-year-old boy is fighting for his life after a bone marrow transplant led to a brain bleed.

Doctors told his mother he had two days to live. More than a month later, Logan is still fighting.

Logyn Von Aschen is recovering from another brain surgery on Monday.

Katie Von Aschen, Logyn's mother, says it's Logyn's fourth surgery since he suffered a brain bleed that led to a stroke. She says Logyn is showing signs of life that keep hope alive. 

Since June of last year, a healthy, happy, ordinary 11-year-old boy’s life was turned upside down.

"This just sums up who he is,” said Katie. “That face; he's just so much fun, and you can just tell it in this smile.” 

Logyn Von Aschen was diagnosed with Aplastic Anemia, a rare blood condition where the bone marrow doesn't produce enough new blood cells.

His health forced Logyn to take virtual classes, except for one: Owasso 6th grade band.

"He would come in and participate every day, even when he had all these stints and things like that would hinder most kids,” said Kyle Wiemer, the Owasso Band Director. “He would come in and be like, ‘Yeah, I got this, no big deal, I’ll make it work,’ playing his clarinet and things like that."

In December, things went from bad to worse.

Katie says a 3-hour bone marrow transplant turned into a 10-hour procedure. It ended with Logyn having seizures and then a stroke that caused severe brain damage.

"I relive it every day. That's all I see, that's all I hear because he asked mommy and daddy, help me, and that's when he seized and that's all I see in my head," said Katie.

Katie says Logyn can hear, cough, and squeeze hands, but his movements are limited, and doctors say he is blind and will never be the same.

"He's fighting every single day,” she said. “He wakes up and does new things, he smiles sometimes, and that's what we treasure."

"He's doing good,” Cooper Von Aschen, Logyn's oldest brother, said. “I'm proud of him."

Now, Katie says she is focused on getting Logyn home.

Even though doctors say to prepare for end of life, Katie says Logyn isn't there yet.

"We're still fighting every day for the treatment he needs. We're not going to stop. He’s fighting, we're fighting," Katie said. 

Katie says Logyn has one more surgery before he can go to a rehabilitation center where his family will learn how to take care of him once he's home.

You can help the family by entering a raffle at St. Henry Catholic Church in Owasso here.

You can also donate to his GoFundMe here.